Keratoconus x Surprise! It’s a…

Keratoconus & tumor misdiagnosis

Surprise! It’s a

Guess who's back after a hot minute! 

When I started this blog two years ago, my mission was clear - to provide answers, hope, and a guiding light for those navigating life with a Keratoconus (KC) diagnosis. But wait, hold your horses! My last post, "Keratoconus x the Future," was just the beginning. Turns out, I barely scratched the surface. Get ready for a rollercoaster ride through the uncharted territories of working with keratoconus, the financial struggles, anxiety's tight grip, and yes, even the wild world of dating with KC (update)!

Today’s post is a bit different from my other KC posts. Picture this: I recently found myself bedridden for months, thanks to surgery unrelated to Keratoconus. As I lay there, unable to pop in my Scleral lenses, my thoughts took an unexpected dive. I realized life had more to unveil, beyond what I spilled in my previous posts. I assumed one major health challenge per lifetime, but boy, was I wrong!

Fast forward to 2023, and I'm hit with another curveball. No, not Keratoconus-related, but a tale that resonates deeply with the healthcare rollercoaster a lot of women have ridden. Buckle up for a non-KC story that'll leave you questioning the 21st-century medical landscape.

On January 13, 2023, the unexpected unfolded. A routine doctor visit turned into a whirlwind of emotions. "Congratulations, you're pregnant!" they cheerfully exclaimed, only to drop the bomb seconds later - "Your baby is dead." 😲 From the confusion of pregnancy to the lows of an ectopic pregnancy nightmare, the roller coaster went off the rails within minutes. The moment went like this:

*silence*

The Doctors: “Ok…” *they began speaking in Spanish*

Me: >.> 

The Doctors: “Congratulations”

Me: For what?

The Doctors: “You’re pregnant!”

Me: No I’m not

The Doctors: “You didn’t know?”

Me: No!

The Doctors: Yes, you are having a baby

Me: LOL no way! 

The Doctors: Yes 

*I began thinking of the million and one ways my Caribbean Father was going to kill me*

Them: …Wait…. *starts back speaking in Spanish* Their tone changed

Them: I’m sorry there is no heartbeat, your baby is dead!

Me: What?

Them: Dead it’s dead.

Them: You have to do surgery right away to get the dead baby out of you or else it’ll be fatal for you.

Me: What?

Them: Sit up! Listen You’re having an ectopic pregnancy. Come on you have to go now, I’m going to write you a note to take to the hospital and they have to do surgery right away. 

As I grappled with the news, a second opinion became my lifeline. Spoiler alert: Not pregnant, but facing a grapefruit-sized mass wreaking havoc in my ovary. Misdiagnosis strikes again! Also, the unknown of whether or not it was cancer drove me even more insane.Surgery became the only solution, unveiling the true culprit - Endometriosis. The emotional aftermath was a wild ride, with tears flowing like a river and hormones playing a symphony of chaos. It took me months after surgery to have grips on all the emotions. I was lucky enough to have amazing support and understanding from my loved-ones. I hated whenever I lashed out on them, and I tried my best not to but my emotions always got the better of me.

But hey, here I am, scars and all, stronger than ever. This journey, though bumpy, gave me insights into the stark disparities in healthcare perception. Why does one condition draw more attention than the other? It's a question I can't help but ponder.

There’s so much more I can say about this particular experience but this is a Keratoconus Blog, so I decided to keep it short touching the major points. 

So, stick around! There's more to unravel, more stories to share, and more questions to ask. This blog is back, and it's not holding back. Let's dive into the complexities of life, health, and everything in between. Who said non-KC stories couldn't be as captivating?

Until the next post Luvs! x 👋🏾💙

#LifeBeyondKeratoconus #HealthcareRealities #healthycare #health #womanhealth #goodhealth #healthtalk

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